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The goal of this Region I collaborative project is to increase the frequency of interactions between the Region I Hemophilia Treatment Centers with the purpose of communicating specialized knowledge to improve patient care. Friendship Day: For the past twenty years the New England network of hemophilia care providers has met annually as a region for networking, medical and research presentations and coordination of patient care. This annual meeting is titled “Friendship Day”. The ultimate goal of Friendship Day is to gain information and encourage collaboration to improve the quality of specialized care provided at the HTCs. This group of physicians and nurses has collaborated on several regional patient based projects sponsored by the Hemophilia Treatment Centers including adolescent programs, parent weekends, and summer camps. The Region I team of hemophilia care providers is a cohesive group of professionals that enjoy meeting and working together to improve patients care. Members of Region I benefit greatly from this annual meting for the dissemination of information and innovative ideas to maintain high standards of hemophilia care in New England. Video Grand Rounds Although the Region I meetings are extremely beneficial, they are limited by distance and time. “Video Grand Rounds” is a way to increase quality interactions and enhance communication between centers in our region. The format of the Video Grand Rounds is similar to attending a session at a regional or national conference except that it is viewed on a computer screen. After making the connection via an internet access, a small window shows a tape of the presenter actively talking about the information as the “Power Point” slides coinciding with the talk are viewed in a large box next to the presenter. These presentations can be viewed via the internet on both high speed (ISDN, DSL, Cable or Ethernet) and slow speed modem connections. These video sessions will be followed by a discussion period moderated by a phone-based teleconference. Each treatment center in the region has agreed to participate by presenting at least one of the programs and attending the conferences throughout the year. Schedule: There will be eight programs throughout the year, one for each month excluding December and summer months. Professionals from the Yale Medical Services Department will coordinate a time for taping of the sessions. These taped presentations will then be posted on this website. To ensure patient confidentiality, access to the presentations will be password protected and no patient identifiers will be used. On the third Friday of the month from 8 to 9 AM region I treatment centers will view the presentation simultaneously via the internet. At the end of the taped session there will be a phone based teleconference initiated by the project coordinator. This call is a chance for interaction, discussion and questions to be addressed. As a region we decided to address the following topics: Inhibitors, Management of synovitis, Rare factor deficiencies, Acquired von Willebrand disease, Hepatitis in hemophilia patients, Pregnancy and delivery in families with hemophilia and von Willebrand disease, Prophylaxis and venous access, Clinical management of hemorrhage in hemophilia. Potential: This program has great potential to directly benefit the bleeding disorders community by supporting the pursuit of excellence for the nation’s network of hemophilia treatment centers. By providing valuable resources to expand the dissemination of experience and knowledge gained by experienced professionals in the field, education and outreach efforts related to persons with bleeding disorders will improve. Greater networking in this community supports the feasibility of developing more joint medical and nursing research projects related to bleeding disorders. Sponsor: This project is sponsored by a grant from the Aventis Behring Foundation. |
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